My name is Trevor McClay, I am 61 years old, retired and live in Northern Ireland.
My wife Audrey and I have two married daughters, the eldest lives in Scotland and the youngest here at home.
Our eldest daughter has two children ( boy and girl) and the youngest a little girl ( who will have a a new baby brother or sister by Christmas).
The reason for this blog is because the little girl in Scotland, who is 15 months old, was diagnosed with a rare genetic disorder known as Prader-Willi Syndrome (PWS) on 14th August last year.
Our whole family was devasted with this traumatic news - many a tear was shed and will undoubtedly continue to be shed for the rest of our lives.
We do not know what the future holds, but we do know that for all of us life will never ever be the same.
As a parent you always feel you can help your children to sort out their problems - not this time!!
For whatever reason I started keeping a diary after receiving the news about our garnd-daughter, and now just over a year later I feel able to share with anyone who might be interested, how we as a family are trying to cope.
Hopefully it will help me by sharing my pain, and also help raise awareness of Prader-Will Syndrome.
